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Erosive oral lichen planus

Autoimmune Diseases | Last Active: Jan 19 4:18pm | Replies (231)

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@artist01

@bustrbrwn22 Hi Buster Brown. I've had very painful Oral Lichen Planus since December. Inner lips, tongue, etc. Was barely able to eat, drink, swallow, talk. After 3 or 4 doctors and about 6 types of prescriptions, I was referred to a dermatologist who firstly prescribed applying Clobetasol ointment to the lesions 4 times a day. When that failed he prescribed it's use 6 times a day. No relief. Finally, he prescribed
Protopic ointment 2 times a day. The lesions are now disappearing - slowly, The pain is gone!(hallelujah!) I've also been using Desert Essence Coconut Pulling Rinse after brushing my teeth with Arm & Hammer toothpaste, ( contains no parabens, laureate sulphate (sp) or other "bad" additives.) I'm so hopeful I've got this awful autoimmune disease under control at last. I see the dermatologist again on September 13th.
I hope this information might help you, Buster Brown! Warmly, Laurie

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Replies to "@bustrbrwn22 Hi Buster Brown. I've had very painful Oral Lichen Planus since December. Inner lips, tongue,..."

@artist01. Thanks so much! I actually have some tacrolimus that was prescribed for my rosacea but it burned on my face. I will try a little on my lips but I’ve seen contradicting things online. One says you can use on lips and eyelids another says you can’t. So your dermatologist was ok with using in your mouth? Then it must be ok for lips. Not sure if my eyelids are LP or rosacea. Have you ever used on eyelids? Awesome info. Thanks!!