Hi- our medical situation sounds similar. I had a lower left lobectomy in 2013- ground glass nodules (with no cough symptoms)- which were an incidental ct finding after a round of bronchitis. Followed them for almost two years before agreeing to min invasive surgical removal at Duke. Benign.
Also, followed by rheum for Raynauds for ~15 years and more recently for scleroderma.
Logistically, if you can connect w/ a major teaching medical center, you will have better options for locating md’s with a depth of exp treating scleroderma folks. I am sorry this is so difficult to navigate. Sending good health vibes your way.