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Anyone out there diagnosed with Pudendal Neuralgia?

Chronic Pain | Last Active: Feb 27 10:13am | Replies (196)

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@olivedog

Where do you find anesthesiologists who do this type of chronic pain stuff..I have been diagnosed with pudendal nueralgia...not fun!!! Have tried injections to 3 branches of pudendal nerve, trigger point injections, pelvic floor therapist was too agressive and opened this can of worms. I am now seeking out a urogynecologist who can perform pudendal nerve ablatement...not an easy task...I have been in relentless horrid pain...this started 5 years ago after being over dilated in a hemorrhoid banding. Pain upon defacation. Well it ended up, 10 colorectal surgeons later to be internal rectal descent. Had this repaired with good job on rectopexy...with surgeon telling me he could not stop the nerve pain upon defacation. I was to go see a Pelvic floor Therapist, as the pain was still there. I found I thought to be a very good one...1st 2 visits doin good...3rd visit African beehive started. Right now I'm doing tens, unit...and some stretches. I've had mri sacrum, shows connection to my foot nueropathy but not this. I think I found a urogyno in West LA, Dr. Michael Tahery...head of woman's clinic at Cedar Sinai ...asking about pudendal nerve ablatement...his staff said he performed this ...being a holiday, I must wait till Wednesday to know...but it is a long journey to get there. I feel so in the dark...the urogyno who did injections is never available or ever writes I have no medical professional who gets PN...last nite I tried an old tens item I used in the past...tens anal probe. It actually feels better....so going to do sensible things I know help, as no doctor does. I do not get why doctors are not taught about the pudential nerve...most not even knowing what it is. I must be my own advocate...I had a hard time getting on here.
If you know or have advice or questions...please write...I'm in Southern California ...thank you!!!
Hope ur having a nice holiday weekend!!!
Cheri....
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Replies to "Where do you find anesthesiologists who do this type of chronic pain stuff..I have been diagnosed..."

@olivedog I cannot offer any REAL help for this unimaginable pain you must be going through. I can't believe something like this can happen and a surgeon still being allowed to operate. My deep prayers and thoughts go out to you, Cheri. At least know you have my support and I am here for you if you need it.

This is awful and like I have to told others, the only thing that worked for me after 14-1/2 years of sitting on a donut is anti-seizure medicine. Ask ask your doctor. This worked quickly too. Good lucks.