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Just Diagnosed with Small Fiber Neuropathy

Neuropathy | Last Active: Aug 12 10:26am | Replies (236)

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@johnbishop

Hello @retired123, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I have idiopathic small fiber peripheral neuropathy with only numbness and some tingling but no pain. I also have to wear compression socks which makes the tingling a little worse but so far at 78 I can still drive and walk but not very far. My walking problem is more to do with my lower back and having what I think is bent spine syndrome (BSS) which makes it difficult to stand up straight when walking and I tend to lean forward. I shared my story and what has helped me in the Member Neuropathy Journey discussion here: https://connect.mayoclinic.org/comment/310341/

There is another discussion which you might find helpful - Neuropathy: Numbness only, no pain: https://connect.mayoclinic.org/discussion/neuropathy-numbness-only-no-pain/

Awhile back I saw a new device for people with diabetic neuropathy that helped them walk. The researchers came and talked to us at one of our Minnesota Neuropathy Association meetings before they had FDA approval and it was still under development - https://rxfunction.com/. It sounds like it could help a lot of people with symptoms similar to yours.

What type of walking assistance do you currently use?

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Replies to "Hello @retired123, Welcome to Connect, an online community where patients and caregivers share their experiences, find..."

Thank you for your information. I will look into all of it. In your post you mentioned a list of supplements and vitamins that have helped you. Could you share it, please? Thank you.