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← Return to Erosive oral lichen planus
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Autoimmune Diseases | Last Active: Jan 19 4:18pm | Replies (231)
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Hi, All, for about a year now my lips always feel swollen and painful. I have contacted my dermatologists office several times and they said they couldn't find anything wrong. I was at an appointment this last week and the doctor said if you have oral LP you will have LP of the lips. Coconut oil made it burn worse so the derm recommended vasoline but that doesn't help either. Has anyone found something that helps with the lip pain and uncomfortableness? Thanks so much.
Replies to "Hi, All, for about a year now my lips always feel swollen and painful. I have..."
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@bustrbrwn22 Hi Buster Brown. I've had very painful Oral Lichen Planus since December. Inner lips, tongue, etc. Was barely able to eat, drink, swallow, talk. After 3 or 4 doctors and about 6 types of prescriptions, I was referred to a dermatologist who firstly prescribed applying Clobetasol ointment to the lesions 4 times a day. When that failed he prescribed it's use 6 times a day. No relief. Finally, he prescribed
Protopic ointment 2 times a day. The lesions are now disappearing - slowly, The pain is gone!(hallelujah!) I've also been using Desert Essence Coconut Pulling Rinse after brushing my teeth with Arm & Hammer toothpaste, ( contains no parabens, laureate sulphate (sp) or other "bad" additives.) I'm so hopeful I've got this awful autoimmune disease under control at last. I see the dermatologist again on September 13th.
I hope this information might help you, Buster Brown! Warmly, Laurie