← Return to (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
Discussion(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Replies to "OMG I was just diagnosed in July of this year. I was terrified. I have started..."
Hello Jo Ann - this is Pam in Boston. For many years, when I am getting pneumonia, I can tell because I have pain in my right lung, just above my breast .. sometimes it even radiates up into my collar bone. If the pneumonia is really bad, the pain is sharp with every breath. No doctor has really explained this to me, but it is my "canary in the mine" that tells me I am getting sick. And when they do an xray, it shows pneumonia. Best to you, Pam
Does anyone of you had a video deglutition (check on the web) to know if you have some aspiration when you eat or when you drink that goes to your lungs. The radiologist told me the other day it was the cause of my lung disease bronchiectasis. I remember coughing
when swallowing my saliva or drinking liquid. It made sense for my case anyway. I had a real bad pneumonia where I told the doctor that I thought it was cause by aspiring what I had throw up but he ignore me. I describe the reaction to the radiologist and
he said I was right. God was I ever weak! I thought i was going to die. It happen to me twice. He say that x-ray (video deglutition) is not use much to diagnose people with pneumonia or breathing problems. It should be used more often because aspiration
can be the cause of pneumonia but it is under evaluated. I had never heard about that test for lung disease before he recommended to do that test instead of a ctscan. Dr Ublah is now going to practice in Pensylvania. I was so priviledge to talk with him.
We don’t ask enough to speak with Radiologist. We should ask more question.
Im going to check into getting that test.
How was the test done?
I get that but it comes and goes and doesn't always seem to be when I fell like I have any pneumonia symptoms.
Jo Ann K
Pfists , I think you are talking ti nick52. Go on google search for Dysphagia video and you will see how the test is done or google video deglutition. Those who has more than one pneumonia a year can be cause by aspiration. Chech it out!
Dear Pam,
Have you ever had a test to find out if you do aspiration. The test is call video deglutition. Maybe you should if you have as many pneumonia. I had the same pain as you have when I had my first big pneumonia in 2009 and the second one in 2016. Both
were by aspiration. You have nothing to loose to check it out!
Nic52
@nick52 , Thank you, I will look into getting this test as I have trouble swallowing. I had my throat widened year before last and was told I may need it done annually. I can tell that it is time for that again because my food collects at the bottom of my throat and hurts. It is that same feeling that you get when you've swallowed a pill without enough water, and it sticks there and is painful.
Dear Windwalker
The pill feeling affect is call globus throat check this on google
Video of déglutition
https://www.youtube.com/watch?v=wqMCzuIiPaM&sns=em
I get pain off and on since I had the pneumonia when it was first diagnosed 2.5 years ago. I have mentioned it at my appts by it never seems to be addressed. I guess if the CT or CXR is OK they aren't concerned.
Jo Ann K