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Living with Rare Disease and Chronic Pain: What's your story?

Chronic Pain | Last Active: Sep 2, 2021 | Replies (43)
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@kkmommy

Type III Collagen Glomerulopathy (Collagenofibrotic Glomerulopathy

I am trying to find a Doctor Who could help me with this. I was diagnosed with us today. I don’t know what to do because there is no cure and no treatment for it. Does anybody know who can help getting the protein out of the urine

I’m so scared

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Replies to "Type III Collagen Glomerulopathy (Collagenofibrotic Glomerulopathy I am trying to find a Doctor Who could help..."
Ginger, Volunteer Mentor | @gingerw | Sep 2, 2021

@kkmommy I just replied to you under your other post. You heard right, there is no cure, no treatment, but there is nothing to say you cannot live a good long life. It takes being aware on your part, and having a great nephrologist. Your kidneys are not able to return protein to your system because the filtering components in your kidneys are being blocked.
Ginger

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