Collagenous Gastritis – Searching for Answers

I have collagenous gastritis. I was first diagnosed 10 years ago. Prednisone about did me in. I am on my 3rd flare up in 10 years. I was treated with budesonide and placed on a feeding tube. The first two times I completely healed after 4-5 months. This third time I got a little better and was able to go back to work but now it is flaring up again. I was referred to Mayo and have an appointment in 6 weeks. My current doctor had me open up the budesonide and put it in apple sauce to better treat the stomach since it is designed to treat your intestines. I am frustrated and worried. Hoping to find some answers. There is a local ketamine office where I live and occasionally get iv infusions with vitamins and minerals. It makes me feel better right away but doesn't last and is expensive.

I have collagenous gastritis. I was first diagnosed 10 years ago. Prednisone about did me in. I am on my 3rd flare up in 10 years. I was treated with budesonide and placed on a feeding tube. The first two times I completely healed after 4-5 months. This third time I got a little better and was able to go back to work but now it is flaring up again. I was referred to Mayo and have an appointment in 6 weeks. My current doctor had me open up the budesonide and put it in apple sauce to better treat the stomach since it is designed to treat your intestines. I am frustrated and worried. Hoping to find some answers. There is a local ketamine office where I live and occasionally get iv infusions with vitamins and minerals. It makes me feel better right away but doesn't last and is expensive.

I am newly diagnosed with EPI (exocrine pancreatic insufficiency) and collagenous colitis (thinking it is the same as collagenous gastritis). Not sure which is which so far, but the digestive enzymes for EPI have helped. Not sure which symptoms are which but a good day is a good day. I'm sure we'll talk more.

Hello! I was diagnosed with collagenous gastritis two years ago in Chile. It started with anemia and with pain when I ate (whatever I ate, even the blandest things), and with those symptoms, an endoscopy, and several blood tests (that discarded celiac disease and diabetes), I got a diagnosis. I started treatment with Omeprazole and medication to treat the anemia, but after almost a year, that didn't work. After that treatment, my doctor prescribed budesonide, but prepared in a way that it could act in the stomach, not in the colon. I've been with this new treatment (accompanied by the anemia medication) for about eight months, and it hasn't worked that well on eliminating the collagenous gastritis, it has only helped with the pain.
I tried a holistic diet that eliminates diary products, gluten, any ultra-processed foods, and diminishing carbohydrates, but it only increased the pain in my stomach.
I am very interested in any opinions regarding how I should proceed with my situation.

I have what may be a stupid question....but can taking collagen supplements in pill or powder form cause this?