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At a loss, multiple consultations still no answer...any idea?
Autoimmune Diseases | Last Active: Nov 28, 2023 | Replies (338)Comment receiving replies
@change25, I’ve been wondering how your medical appointments and tests are progressing. While it would be good for you to get answers, I sure hope it’s not CFS.
There was some discussion on CFS on Connect recently and @johnbishop posted this incredibly moving and informative Ted Talk about it. As I didn’t know much about the disease, I watched it. I recommend it if you’ve not seen it - https://www.ted.com/talks/jennifer_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose/up-next
Best wishes on your finding a diagnosis soon!
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Hey @athenalee, I hope your are doing well. Thanks for the link, very scary illness indeed. At one point it wasn't recognised but in some cases biological markers can be used for a possible diagnosis. I have faith that the MRI will reveal something. I did ask my parents to monitor changes in my skull as indentations have formed that weren't previously there and I do believe that's the key to a diagnosis. Where they agree that they've definitely worsened over time.