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At a loss, multiple consultations still no answer...any idea?

Autoimmune Diseases | Last Active: Nov 28, 2023 | Replies (338)
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@change25

Thanks for getting in touch. Yeah, the rheumatologist I saw thought it may indeed be CFS but no official diagnosis was given an I haven't been referred to my local department so I'm still waiting on that. Circumstances have been tricky due to covid so testing has stagnated, however I have recently had a FIT stool test which revealed some abnormalities and I've been offered a emg/ncs test which is taking place tomorrow. This will then be followed by an MRI which will hopefully identify what's wrong. I've not heard about either of those, would a routine blood test reveal if you have it?

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Replies to "Thanks for getting in touch. Yeah, the rheumatologist I saw thought it may indeed be CFS..."
athenalee | @athenalee | Sep 1, 2021

@change25, I’ve been wondering how your medical appointments and tests are progressing. While it would be good for you to get answers, I sure hope it’s not CFS.

There was some discussion on CFS on Connect recently and @johnbishop posted this incredibly moving and informative Ted Talk about it. As I didn’t know much about the disease, I watched it. I recommend it if you’ve not seen it - https://www.ted.com/talks/jennifer_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose/up-next

Best wishes on your finding a diagnosis soon!

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