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Do I really have PMR?

Polymyalgia Rheumatica (PMR) | Last Active: Jan 21, 2023 | Replies (106)

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@tsc

Hi, I had horrible pain and stiffness in my whole body from the neck down for four months, with slightly elevated inflammatory markers that my Primary Care Physician did not follow up on. That horrible pain receded after 9 months, but I developed other troubling symptoms. Long story short, one year after the onset of the first symptoms, I was diagnosed with Giant Cell Arteritis, the companion disorder of PMR. My sed rate was 120. If there is a dramatic clinical response to symptoms of PMR, within 1-3 days after steroid institution, even without the inflammatory markers, it supports the diagnosis. (Cecil and Goldman's Textbook of Medicine). The symptoms are indicators of these disorders, sometimes more than the lab test results. Prednisone took away 98% of my pain, but I have osteoarthritis in the right shoulder, which is still painful and for which I am getting physical therapy.

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Replies to "Hi, I had horrible pain and stiffness in my whole body from the neck down for..."

This tells the true story of PMR and blood test results. I've found this to be the case in my own PMR experience, Doctors should be made to listen or find another doctor that will listen. Its crazy logic to deny a patient PMR pain relief just because the doctor is more concerned about the side effects of long term Pred use. Leaving a patient in pain is surely going to make that patient take more drastic measures to get out of that pain. Doctors are sometimes our worst enemies. My GP is a real diamond. By working together, I'm down at 1.5 mgs from 50mgs 14 months ago. Rheumatologists are the worst offenders.