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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 53 minutes ago | Replies (7050)

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@akc

Hi my name is Angela. I live in Central Florida and the last two years have been absolute hell. I've been trying to find out what is wrong with me and I was told that somehow I have ended up with spinal cord damage and I thought I had MS but the neurologist are not seeing that. I have been very depressed trying to accept my lack of Mobility. I'm only 56 and I feel like I'm twice that age. I was taking 1800 mg a day of Gabapentin but I am apparently experiencing some very bad side effects from that medication so I'm working my way off of it and now I finally have some energy to work with. I've gotten myself down to 600 milligrams per day. I think the Gabapentin has caused a lot of demyelination to occur to my nervous system and it makes me miserable. I think it's an awful drug!

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Replies to "Hi my name is Angela. I live in Central Florida and the last two years have..."

@akc. I had seizure like reactions to gabapentin when I took it before. I should not have agreed to take it again with my new dr but she said gabapentin couldn’t have caused those symptoms. So the 2nd day I had the same reactions. I lose control of my hands and legs without warning. Sometimes I can’t remember a word I remembered just months ago. I can’t spell instinctively any more. I have to re-read everything and even then I don’t catch errors. I hope this isn’t permanent. I hope you get better and it isn’t this CFS.

I am so sorry you are going through this. Most medicines just create other issues. Have you tried a detox? I am doing that now. Not sure I understand it but the gook that is coming out of me is years of MRI contrasts and anesthesia. Mikayla