Complex regional pain syndrome or reflex sympathetic dystrophy

Hi Erica & everyone,
Appreciate the welcoming note.
My family have been a very good at supporting me. I have a hard time making friends who will stick around when you're going through so many health crisis. Even though I fight very hard not to let this disease control my life.
Pain control, by exercising and eating a plant based diet, a good pain doctor, breathing techniques and just keep moving has helped me maintain some sense of normal. But I have unavoidable bad days or months and still I do my best to reach out to others.
I am in a crisis right now. I need a jaw transplant due to bone loss due to RSD. But I am having trouble getting someone to approve it medically. Or not part of a dental issue. Anyone have any advice? I can't afford to pay for it.
It's just as if I had cancer or any other disease that'll cause me to lose bone.
I'm so frustrated.
Excuse my rant. If there's anything you or anyone can think of that'll help me. I'll listen.
Thanks,
Monablue58

I did Gabapentin 400mg 4 x day and it dropped my glucose and bp. Went on Lyrica but didnt help at all.

I take Cymbalta but for my slight OCD and anxiety. Hasnt helped my CRPS. Wondered if anyone else had had success with it.

I had stellate injections (Fentanyl, Marcaine and 2 steroids injected into a nerve in my neck to travel to my hand/wrist) to reset the pain/nerve receptors. The next day I did PT for a month. We did this 3 times. I can now move my hand but still have all of the symptoms from CRPS. I had held my hand to my chest for 6 months before the tmt so I am proud of that, at least. We also did Gabapentin and Lyrica as I noted in another conversation. I am available to talk to if need more info.

Hi all, I have just been diagnosed with early CRPS in my right dominant hand and arm following a bad break and wrist surgery.
Yesterday was day 1 soecial physio, I will be using mirror box theraphy, desensitization and will start on a low dose antidepressant and tylenol 3 to help control pain.
I am hopeful that agressive therapy will tamd this monster.

have you explored using calmare/scrambler tx? they have had excellent results for crps.

I have had CRPS for 22 years. I had surgery for Tarsal Tunnel Neuritis on my right ankle, which in turn caused this chronic pain syndrome. It started out with a cold foot. Later it spread up to my thigh and continued up to the right side of my body all the way to my right side of my face after I fell over a table and hit my right thigh and bruised it. I was put on Cymbalta and started on Gabenpentin, which was increased to 600 mg 4 times a day. It has gotten my burning and hypersensitivity under control. I have my pain under control now and can live better. I am never out of pain, but it is bearable now. I have to have heat on my foot 24/7 now, but have learned to live with that. I have had physical therapy, injections, 2 Dorsal column stimulators inserted, different meds, therapy. You name it and I have tried it! I hope this might help someone on here. I will be happy to answer any questions.

It made me goofy and forgetful.

Do you mean dorsal ganglion root stimulators? How did they work for you?

I have the same, early CRPS diagnosis in my right dominant hand from a break and surgery. I just started prednisone to reduce swelling and was told to make my hand work so I don’t lose flexibility. Please tell me how you are, how you found out about treatment options and what worked. I was told I can beat this at this point and want to be aggressive to do so.