1. < Osteoporosis & Bone Health

Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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JK | @contentandwell | Aug 17, 2021
In reply to @charleneb "I usually buy lactose free with 1% fat. I agree it tastes richer than regular 1%...." + (show)
@charleneb

I usually buy lactose free with 1% fat. I agree it tastes richer than regular 1%. I recommend it for other reasons too. While it is usually close to double the price of regular milk, it last so much longer in the frig. I buy it at least a month ahead and it saves trips to the store so long as it isn't opened. Really nice in the winter.

Just a reminder to others considering it: Because it has no lactose it does NOT make great pudding unless you want pudding you can drink. I tried making tapioca repeatedly with it and would have to overcook it to get it to thicken. I finally read about how it won't thicken. I use regular milk for it now and after heating it I don't seem to have a problem. I also keep low fat dry milk packets in the house so I can make pudding without going to the store.

I have had other health issues in addition to osteoporosis over the past years and being able to have plenty of reasonably healthy food in the house is a very good feeling.

Char

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@charleneb Good to know about it not being good for pudding. I never make pudding but I do occasionally make a chocolate cream pie or a coconut or banana cream pie and I'm sure it would be the same with those. Thanks for the word of advice.
JK

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gabiquinn | @gabiquinn | Aug 20, 2021

Tengo que tomar el mismo y lo estoy pensando x que produce inflamación de piernas y vientre yo tengo problemas de circulación de la linda,es bueno,caro y tiene consecuencias positiva y negativas

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2 replies
Amanda Roe | @amandajro | Aug 21, 2021
In reply to @gabiquinn "Tengo que tomar el mismo y lo estoy pensando x que produce inflamación de piernas y..." + (show)
@gabiquinn

Tengo que tomar el mismo y lo estoy pensando x que produce inflamación de piernas y vientre yo tengo problemas de circulación de la linda,es bueno,caro y tiene consecuencias positiva y negativas

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Hello @gabiquinn and welcome to Mayo Clinic Connect. It sounds like you have swollen legs and stomach from Evenity. Is that right?

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1 reply
sus34 | @sus34 | Aug 27, 2021
In reply to @pattyduerkop "I just started last month. will be getting my 2nd dose this month. my endocrinologist said..." + (show)
@pattyduerkop

I just started last month. will be getting my 2nd dose this month. my endocrinologist said in all the people on this program have had no issues and have graduated with very good results. I too had concerns but feel very confident in this program. the only side effect so far was a very sore arm for 2 days. I can deal with that.

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Just curious…did the doc mention how many people he has had on Evenity?

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Patty Duerkop | @pattyduerkop | Aug 27, 2021

answer was "quite a number of patients" . but a doctor isn't going to expose much information either. I have now had 6 doses and am doing great! no side effects. am looking forward to see the results.

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marcd | @marcd | Aug 30, 2021

I am taking evenity. No noticeable side effects at all.

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sus34 | @sus34 | Aug 31, 2021

How long have you been on evenity?

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1 reply
sus34 | @sus34 | Aug 31, 2021

Anyone know if Evenity also causes hair loss?

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siberian | @siberian | Sep 1, 2021
In reply to @sus34 "How long have you been on evenity?" + (show)
@sus34

How long have you been on evenity?

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I have had 2 injections

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tinar | @tinar | Sep 2, 2021

I would like to discuss the osteoporosis drug Evenity with anyone who has taken it or is taking it.

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