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Started immunotherapy maintenance: What side effects can I expect?
Lung Cancer | Last Active: Mar 15, 2022 | Replies (51)Comment receiving replies
Hello it has been some time sense I have wrote anything, I have a question about Keytruda. I have been getting treatments and about the last month or two have noticed that I get real stiff in my knees and bones does anyone else get this? also has anyone heard of Issels oncology immunothearpy? and also do you think pet scans are better to have than ct scans for your 3 month check up?
thanks cynde.
Replies to "Hello it has been some time sense I have wrote anything, I have a question about..."
I'm pretty sure stiff joints, achy joints/bones are a side effect of Keytruda. Please confirm with your doctor. My husband has stiff, achy joints/bones, but has bad arthritis and bone lesions so it's hard to tell what's what? (He's been on Alimta + Keytruda and taking a chemo break so only on Keytruda right now.) I read water exercises may help with joint stiffness, etc... Worth a try??? ~Best to you. (FWIW: It seems our doc prefers CT's rather than PET's? A former doc preferred PET's over CT"s? Again, discuss with him. ?I don't know why you couldn't have both if it makes you more comfortable?)
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After 7 Keytruda I got so sick, no energy no appitite so I stopped--I got a UTI don't know if it was Keytruda but my Doc.didn't do anything I end up in the ER with Bladder infection Kidney and Blood I was on my death bed. I fired the oncologist and am starting with a new one Oct. 5th I don't know if I will ever start Keytruda again.