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@jgraber

This is the first time in 20 years I’ve talked to other people dealing with this horrific nerve pain. This means the world to me. Thank you. I love your analogy of “comet” pain. I completely get that. I have severe nerve pain that happens throughout my body now but it seems like the area speaking loudest is what I feel. Doctors ask what area is the worse and that is hard to answer because it changes. Sometimes I feel like a knife is stabbing into the rectum, shooting pains from the hip region down my legs, severe bearing down pain over sacrum like back labor, deep aching, horrible leg pain, feet pain, hands on fire and pain up my arms, strong vibration sensations in both hands simultaneously, Feeling that I’m wearing tight gloves and socks when I’m not, neck pain shooting over my head, painful scalp area on the right side of head with shooting pain and very tender to touch, migraines, upper right abdominal pain, intolerance to cold and hot temperature (cold air feels very painful and I overheat easily and I’m way past menopause), etc.

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Replies to "This is the first time in 20 years I’ve talked to other people dealing with this..."

I'm now blessed with this peripheral neuropathy from having breast cancer. Started a month ago. Oncologist said it would go away; didn't offer any medication for it. Bottoms of both feet at first sign of it. Now both hands slightly numb. My left foot is worse with it up to my ankle area also. I have lightheadedness most of the time when standing. I started ny research just recently here. In reference to Chemotherapy induced peripheral neuropathy (CIPN) The two drugs being used for treatment are; duloxetine and pregabalin. It also affects my quality of life. Also found other treatments being tried in trials, such as low frequency electro stimulation device and acupressure clinical trial protocol and ear randomized controlled trial; whatever those last three means just don't sound up my alley. I also have something else I'm dealing with right now, which I did post in the gastroenterology post. Achalasia type 111 and epigastric (small hiatal hernia), which I'm seeing my general surgeon about a possible procedure for it tomorrow. I thought maybe my lightheadedness was due to it, but from what I have read about this chem related neuropathy; it's most likely causing my lightheadedness which is getting worse. Any words of wisdom for me is greatly appreciated. Especially as far as any medication advice. I would like to have some knowledge of any medication to ask the doctor tomorrow. Thank you, Doris