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@jgraber

That is excellent advise and very helpful. When I first started having neuropathy symptoms 20 years ago I went through severe depression, anxiety and I went to many different physicians looking for a cure. I had a full hysterectomy that threw me into surgical menopause and the severe nerve pain continued. I finally got to a very smart neurologist and gynecologist who put me on the right medications so I could cope. I also started therapy. At that time the therapist told me I needed to pace myself, do a little work and rest and do a little bit more. I was resistant to taking medication initially because as a nurse I was scared of addiction and harming my kidneys or liver. My husband told me something that really helped. He said “so what if you die a few years earlier due to the medication because you can’t live now with this level of pain.” The neurologist told me it was better to take the medications and keep active rather than not taking the meds and become inactive and have my muscles atrophy. This advise from these three people helped me tremendously. When the neuropathy spread to the whole body, I again started going to many physicians to find out what is happening. I know that this may be my “new normal“ and I will again have to come to a level of acceptance but it certainly is a process and doesn’t happen overnight. I hate the pain but I’m thankful that I live in this day and age when there are medications and treatments that can help.

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Replies to "That is excellent advise and very helpful. When I first started having neuropathy symptoms 20 years..."

@jgraber Your response is really helpful. I am with a good neurologist who is trying to see what sort of nerve damage we are dealing with. So I have a nerve biopsy on Friday to see what can be learned from that. I have lost muscle already, but am keeping up with leg and upper body exercises to maintain the strength that I have. So far, Tylenol and Gabapentin are making pain manageable. The “comet” pain goes through my foot or leg fast, although it takes my breath away.
I appreciate your wise husband and neurologist with their advice should I need stronger medications for pain, and I connect with your working on accepting a “new normal.”
My numbness has spread to my hands. I’m hoping it is from leaning on the walker, and not a spread of neuropathy. So far, I can still grasp things and type. My best coping mechanism is to keep in the day, and do what I to make it a good one. I have good help with that, as do you. I am glad to be in touch with you here. @efgh1020