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Thank you, John. I am definitely planning to talk to the doctor about the fact that studies have been done, and have found, that it is possible (although rare) to have normal inflammatory markers with PMR. I will also share how my appointment goes.
I do have another question though - in your experience with prednisone, did it completely take away pain from everywhere in your body? Is it supposed to do that? As I said above, I feel much better with less pain for sure, especially in my hips, thighs and lower back but my right shoulder still hurts. Do some areas of pain just take longer for the prednisone to work? Thank you
Replies to "Thank you, John. I am definitely planning to talk to the doctor about the fact that..."
Prednisone does NOT necessarily remove all pain for all people. Many people enjoy being on it because it does alleviate some or all pain. ( it does not help me with pain at all, but drops very negative side effects) I’m off of it now completely. The side effects are gone ( thank God), but the CRP and Sed rate are super high again, somewhat explaining the pain.? I’m not sure where/what to do now. But any joy there was in my life left in April, 2022, with the coming of PMR( thank you Pfizer and Moderna)
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I still had some minor aches and pain when I first got up but it would get better after a little moving around. My rheumatologist had me keep a daily log of my pain on a scale of 1 to 10 and the dosage I was at. This was really helpful as I started tapering off of the prednisone. There is another discussion you might find helpful when you start tapering off of prednisone. I think some sort of daily exercise is a must. Nothing strenuous but stretching, walking, etc. really helps along with some diet changes for more anti-inflammatory foods.
Tapering off of Prednisone: https://connect.mayoclinic.org/discussion/prednisone/