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@efgh1020

@jgraber Thanks for your kind response. I have been talking to a therapist who understands mourning the sudden loss of function, and in a way, of our old identity. We need to build a new life around our disability, but grieving our old mobile and easily active life is part of that process. We can't stay in that sadness but we have to accept it and go through it. Then we can look at what we can do, instead of looking back at what we can no longer do. I am in the middle of that process, I think. @efgh1020

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That is excellent advise and very helpful. When I first started having neuropathy symptoms 20 years ago I went through severe depression, anxiety and I went to many different physicians looking for a cure. I had a full hysterectomy that threw me into surgical menopause and the severe nerve pain continued. I finally got to a very smart neurologist and gynecologist who put me on the right medications so I could cope. I also started therapy. At that time the therapist told me I needed to pace myself, do a little work and rest and do a little bit more. I was resistant to taking medication initially because as a nurse I was scared of addiction and harming my kidneys or liver. My husband told me something that really helped. He said “so what if you die a few years earlier due to the medication because you can’t live now with this level of pain.” The neurologist told me it was better to take the medications and keep active rather than not taking the meds and become inactive and have my muscles atrophy. This advise from these three people helped me tremendously. When the neuropathy spread to the whole body, I again started going to many physicians to find out what is happening. I know that this may be my “new normal“ and I will again have to come to a level of acceptance but it certainly is a process and doesn’t happen overnight. I hate the pain but I’m thankful that I live in this day and age when there are medications and treatments that can help.