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Hi englerbarb, Yes, my inflammation markers are pretty much within the normal range, both ESR and CRP. I’ve had PMR off and on for over 20 years. You can see on the graphs of my tests since 2014 only once they are really above the normal range in 2016. (click links below) That was the time the new Rheumatologist at my HMO, didn’t think I had PMR. She took me off my small maintenance dose of prednisone for a few months, I also didn’t take anti-inflammatory meds during that time. The last test in 2020 you can see the markers starting to go up. Again, another new Rheumatologist needed proof that I had PMR. No prednisone or anti-inflammatory meds . But, by the time those tests were taken I was in so much pain that I was walking with a cane and could barely drive the car over for the tests.
Replies to "Hi englerbarb, Yes, my inflammation markers are pretty much within the normal range, both ESR and..."
Hi Itta-
I will be following this thread, as I have no markers for PMR, but was crippled with "whatever it was" until prednisone. Able to keep the dosage low at 5.5 mg with added methotrexate. Now I imagine that my markers would stay low with this treatment, but never did have an elevated ESR or CRP. Somewhat grudgingly, my rheumatologist put PMR on my record, but she still looks at me like she isn't sure.
So, you and ebglebarb sound like me. I have been on prednisone for a 15 months, methotrexate for 10 months, and have less shoulder and hip pain, but troublesome hamstring and knee pain that makes it hard to bend the knee. As I said in another thread, I ended up with bilateral carpal tunnel release, which was a huge relief. Hope you are feeling better.
Hi Englebarb, Itta, John Bishop.
I had PMR 10 years ago, successfully treated with Prednisolone. Started experiencing exacay the same pattern of pains in March 2022 and was convinced it was a recurrence. Neither ESR or CRP were raised. I had to prompt my GP to test consecutively for all potential conditions with a similar pattern of symptoms, before he sent me to a Rheumatologist. It took 10 months for my them to take it seriously. Rheum. told me I was a very unusual lady, that it was very rare to have it twice 10 years apart. 20mg of Prednisolone took the pain away in 36 hours.
Thank everyone for sharing their experiences!
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Thank you, Itta. I hope you are feeling better!