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Do I really have PMR?

Polymyalgia Rheumatica (PMR) | Last Active: Jan 21, 2023 | Replies (106)

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@johnbishop

Hello @englerbarb, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I believe it's possible to be diagnosed with PMR and have normal inflammatory markers. I had high inflammatory markers both times when my PMR was active. Fortunately it's in remission now. Here's an article you may find helpful – "Polymyalgia rheumatica is an inflammatory condition that causes a particular pattern of joint pain and stiffness, most commonly in older people. It is a rheumatic disorder closely associated, and often co-existing, with giant cell arteritis. Diagnosis is based on the patient’s clinical features, supported by laboratory investigations." — Polymyalgia rheumatica: Look before you leap: https://bpac.org.nz/BPJ/2013/June/polymyalgia-rheumatica.aspx

I think you are asking a really good question but it should be directed to your doctor or care team. I can tell you that I could barely walk when I was first diagnosed with PMR and it was with a lot of pain. After meeting with the rheumatologist in the morning and then picking up the prescription of prednisone and taking the 20 mg tablet prior to noon, I was walking fairly normal and without much pain by 2 pm when I had a follow-up appointment with the rheumatologist that same afternoon.

You mentioned you have an appointment in another week or so. You might want to plan your conversation with the doctor so that you can address your questions and concerns which are good ones. Here's a site with some tools to help you plan your conversation - https://patientrevolution.org/visit-tools

Do you mind letting us know how your appointment goes and if you are able to get all of your questions answered?

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Replies to "Hello @englerbarb, Welcome to Connect, an online community where patients and caregivers share their experiences, find..."

Thank you, John. I am definitely planning to talk to the doctor about the fact that studies have been done, and have found, that it is possible (although rare) to have normal inflammatory markers with PMR. I will also share how my appointment goes.
I do have another question though - in your experience with prednisone, did it completely take away pain from everywhere in your body? Is it supposed to do that? As I said above, I feel much better with less pain for sure, especially in my hips, thighs and lower back but my right shoulder still hurts. Do some areas of pain just take longer for the prednisone to work? Thank you