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Total knee replacement infection after 9 years.

Joint Replacements | Last Active: Sep 10, 2023 | Replies (82)

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@kathleenking

My 79 year old mother had a TKR 6 years ago. Her pain, swelling and hot knee has her in tears most days. Many pain meds don't even help. Three knee doctors all say it looks fine on scans. It is swollen, hot and excruciating. I can not bear to watch her suffering until the day she dies. She has had NO quality of life since her surgery. She now lives with me as it has fully disabled her and no one will listen and help. She is in bed almost for 5 years now. One doctor said it is phantom knee pain, What a bunch of crap! I do not know how to help her and I can not bear it either. I have CVID, Sjogren's, Fibromyalgia and inflammatory arthritis myself and live in pain but nothing I have seems to compare to her pain. She rocks in a chair crying from the pain with cold compresses on her knee. I do not know where tp turn for help and I am so discouraged and sad. If anyone has a doctor in DFW area that helped them can you share the name please?

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Replies to "My 79 year old mother had a TKR 6 years ago. Her pain, swelling and hot..."

Was your mom ever able to get a second opinion? I had a TKR and had awful pain. I saw several orthopedists and finally saw an orthopedist who ordered an ultrasound and they found a rare bone in my knee called a fabella. I had surgery and this extra bone was removed. Finally I could sleep at night.
I am sorry that your mom is suffering so much.

Hello, I have suffered with all symptoms your mom has for only two years. There is something you might try….it is allergy testing. Both skin patch and blood testing might get an answer for her horrible pain. In fact over the past year I have seen 9 doctors. The current doctor had me take a CT scan of knee, a full blood panel and now I am in process of getting a blood test, which isn’t covered by insurance. My particular blood kit is called a LTT test. It tests for all metal particals as well as cement allergy! My skin patch test showed I am allergic to the cement used. It is called methyl methacrylate. It’s a start, at least for me. Something to consider. I live on L.I. My new Dr.Chen , works at Mt. Sinai in NYC.. maybe your moms doctor can reach out to him for more info. Good luck. I hope this helps.
Irish283@irish283.