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The Wages of a missed Neb session.

MAC & Bronchiectasis | Last Active: Feb 3, 2022 | Replies (66)

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@ckscoville

alessandre, I understand how you're feeling. I'm 73 and do two half-hour sessions a day wearing a SmartVest while nebulizing albuterol then 7% saline. It's a routine I've REALLY grown tired of, but I've also experienced what happens when I miss a session. As a CF patient, I realize that i can't afford any shortcuts, and the Trikafta I'm on (for the CF) is a blessing, but the two sessions a day still totally wear me out!

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Replies to "alessandre, I understand how you're feeling. I'm 73 and do two half-hour sessions a day wearing..."

I’m in the midst of acute “brain freeze.” Someone remind me what “CF” is. Don

I hear you. I tried one of the Vest models, didn't help bring up phlegm for me & anyway I find a $15,000-$25,000 piece of equipment problematic on principle. Our healthcare system often seems to be more about draconian & expensive methodologies & maximization of profits along the way than about holistic healthcare. I've felt that nebulizing - but only once a day, my PERSONAL limit - with 7% saline & glutathione has probably been beneficial because I'm conversant with the benefits to lungs of both substances; but nebulizing doesn't bring up much phlegm for me - my system does that on its own for about an hour after I've gotten out of bed. & I feel I can't miss more than 3 once a day neb sessions a week. But cannot do without my nightly postural drainage cum Acapela, tho' it's the coughing in several different postures & the breathing patterns that seem more responsible for bringing up the (typically 1/4-1/2 cup of phlegm) than does the device. Re the device: I'd started with the Acapela, equipment businesses came up with one allegedly better & more expensive device then subsequently with the even more expensive & allegedly better still Aerobika. I bought & tried both & for me the only difference besides increased cost & no doubt profit to manufacturers is that while Acapela required the cleaning of only 2 parts, the subsequent device had 3 parts & Aerobika 4 to clean. So I've remained with Acap. Sorry if I sound cynical but I've been dealing with our healthcare system
regularly since first being treated for cancer when I was 26. I've learned to be cautious about putting all my trust in it; to require that MDs call me Ms. ________ rather than by my first name - to prevent my feeling less than a partner in determining healthcare measures but rather more like a dependent child when dealing with them;
to do some research on my own; & to check out integrative & alternative perspectives. While this approach has served me, I understand that it isn't right for everyone. Blessings!