Hi egayle…I've already found humor in the situation & lots more as well! I'm late 70s, been dealing with bronchiectasis 27 yrs, MAC about 10 - which I apparently got rid of at least for awhile according to sputum test about 2 yrs ago. Wouldn't DREAM of JUST doing what the MDs suggest (what they know about our conditions & can do for us is just too limited from what I've learned) - as long as my savings hold out & I can get some alternative input & nostrums as well. Looking back I realize if had to do over again I'd never spend as many years as I did - before I got REALLY bad - essentially accepting antibiotics & other chemicals as my ONLY & entire option. But it was the easy way out for me for many years, I didn't have to think much for myself, aside from a pretty good diet & basic supplementation. - You've come to terms with which you can live with your condition & good for you! But those terms didn't work for me. So I've found terms, trade-offs, that do. - I've come to take a harder look at my truths, to accept that all the diseases I've acquired 🙂 cancer, TB before that & this - were indeed a reflection, in my case at least, of a profound, if you'll pardon the expression "spiritual" "dis-ease" which I began to address more & more seriously - the which has led to enormous changes, both subtle & gross, & entirely unexpected satisfactions.- When I realized that nebulizing & postural drainage twice a day would destroy MY desire to live, I knew I couldn't do it. & haven't, & have found other ways; none of them perfect. & of course, am constantly negotiating terms, which is one of the things that life seems to be all about. Checking into the chat rooms occasionally is part of that process for me.
Wishing all of us a cornucopia of blessings!