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The Wages of a missed Neb session.
MAC & Bronchiectasis | Last Active: Feb 3, 2022 | Replies (66)Comment receiving replies
It was suggested by a pulmonologist at Mt. Sinai in NYC (associated with Natl Jewish in Denver) that I neb with 7% saline twice a day. I neb with 7% saline - doesn't bother my throat - & reduced L-Glutathione, suggested by a naturopath, ONCE a day & skip doing even that an average of 2 days a week. But need to do postural drainage with Acapella religiously every night. (Prefer Acapella to Aerobika cuz cheaper & only 2 parts to clean instead of 4. ) If any of these jokers were later 70s & low-energy from bronchiectasis like me, they'd KNOW 'twas NO WAY to do these things twice a day & retain any will to live! 🙂 Seriously.
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alessandre, I understand how you're feeling. I'm 73 and do two half-hour sessions a day wearing a SmartVest while nebulizing albuterol then 7% saline. It's a routine I've REALLY grown tired of, but I've also experienced what happens when I miss a session. As a CF patient, I realize that i can't afford any shortcuts, and the Trikafta I'm on (for the CF) is a blessing, but the two sessions a day still totally wear me out!
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@alessandra...I hear you. At 73, I'm exhausted with postural draining twice a day and frequently fall asleep. I do enjoy listening to books on tape while draining. I can travel anywhere and to any time period whereas in real life I can't even go out into my garden.. I love my puzzles while nebulizing. I've tried new things. I hated giving up my therapy practice, but this forum gives me a chance to talk to discouraged folks as well as get encouragement for myself.
This is the first time in my life that I put myself first without feeling guilty. I appreciate the jokers and hope that you will eventually find humor in successfully managing these diseases.