Thank you is Lyrica hard to tolerate? Did you ever try injections? Very scared my symptoms are just starting to progress. Did you get the covid shot. Does trigeminal neuralgia progress quickly. Are you always in pain? Thank you very much.

I have been on Lyrica for about 1 year. I was on 75 mg twice a day, but I was sleeping 18 hours a day. Now we are trying 50 mg. I still have some pain, especially if I brush my teeth or eat. I use Ambesole (baby teething medication) which gives me some temporary relief). How are you taking the Lyrica?
Georgina

I have had some episodes with trigeminal neuralgia. But the most excruciating and scary one happened last week! I truly could not stop wishing I could reach my phone or the fall alert button. I could not even move enough to talk! I thought I was having a stroke! Or that I would wake up with severely belspalsey. I finally was able to relax enough to fall asleep after a couple hours. The pain didn’t go away completely until I had surgery Monday July first. But my orthopedic surgeon and his pa told me that the facial nerve pain was not a part of the cervical pain I was having surgery for. Even though I was experiencing myelopathy. The nerve was from behind my ear then the pain came along the bottom of my jaw up under the base of my cheek bone across to the inner side of the bridge of my nose and ended about the middle of the upper eyebrow! It was worse then the very first time I had an injury which. Herniated L3/4/&5 all because I stiff up from buckling a car seat my 2 year old climbed into. It was hosnestly the scariest thing I had experienced medically ever! I just started the pregabalin about 2 months ago after being on gabapentin for several years. The neurologist suggested that it was just enough of a chemical difference that it could help with some of the nerve pain and more with some neuropathy that seems to be starting in my hands as well as my feet for a long time. They told my the neuropathy was caused from the lumbar stenosis and that the hands started with the same thing from cervical stenosis. But the neurologist said it could be from small fiber neuropathy which might be the underlying cause of a diagnosis of fibromyalgia that I quit talking about years ago. However I have had end plate bone spurs in both lumbar and cervical spine many time. And the 3 that were a big problem were at least 3 years before I had been given an authorization for lyrica. There was never a solution other that walking but with the arthritis in both lumbar and cervical spine for longer that the fibromyalgia, walking wasn’t exactly something I could do much of for many years. Then when I came back to the states after have 30 days of intense medical treatment outside of the us I walked a lot! But still had a lot of the neuropathy and mayo facial pain syndrome in 4 different parts of my body, so I still didn’t discuss the fibromyalgia diagnosis. I do now. It’s been over 20 years and there seems to be more understanding about it being real not hysteria or attention seeking. I will be very grateful to have that part of my personal medical history no longer affect how I speak to doctors, of all genders, about my sensations and degree of pain levels.
Thank goodness for therapy and my ability to see where I made the wrong choices to stay quiet and perpetuate that narrative. I have learned to speak with the compassionate understanding that we are all learning and things will always continue to grow in different ways. Today we have a choice , mostly, of who we want to be deeply intimate with our experiences.