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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 10 hours ago | Replies (7051)

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@gingerw

@bustrbrwn22 I have not been posting much on this thread, but read the posts. This is a great idea, to have your husband video your spasms and all the issues. How can a medical dr refuse to address an issue they can visibly see when it happens? Put it on a spare thumb drive, that can be played back on his laptop, and become part of your medical records. Save a copy for yourself, too!

You have a lot of people on your side!
Ginger

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Replies to "@bustrbrwn22 I have not been posting much on this thread, but read the posts. This is..."

@gingerw. Thanks for validating my suggestion. My husband said they would just think I was faking it. I said I got lucky and had one dr reach out to a personal friend who actually know about lichen planus and he got me in within a day or 2. I will hold hope that if 2 doctors can believe me there might be one more. Looking back I owe so much to that doctor that took the time to pull a favor with a specialist friend. I might have lost my eyesight if I didn’t find just the right eye specialist. I wonder how I can thank her? I assumed she thought I was faking the pain because she didn’t talk to me personally when really she was doing the best thing for my situation. I never would have known if when I thanked the specialist for seeing me so soon he hadn’t said him and this dr go way back. Thanks again. I hope this finds you well yourself

@bustrbrwn22 A few years ago, when I was feeling my head mildly twitch, my neurologist actually recommended it being being videod.