@rwinney. Thanks for taking the time to respond and the recommendations are spot on. I tend to ruminate over if I hurt someone’s feelings, could have done something better etc. I can only use my eyes a short period of time. Unfortunately the suspicion of the most recent specialist is that LP is also now in one of my ears and on my scalp, could even be in my nose based on symptoms and initial visits to drs. Not a pretty way to end up but I sure hope when it get too bad I am offered something to kill the nerve pain. I went through a 4 hour stretch today where my eyes had a deep, deep pain and I was spasming so my husband had to attend to me. The dark bedroom was too bright for me so I had to wear sunglasses. I was so worried no one would respond or support me - everyone here has serious issues. I lost the use of my legs last night while starting to do laundry and they didn’t become useful again this morning but then the all over spasms started. I keep asking my husband to videotape it because doctors don’t believe me. Oh well, I am so uplifted and can’t thank you enough!