← Return to Collagenous Gastritis – Searching for Answers

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@odieanne63

I have collagenous gastritis. I was first diagnosed 10 years ago. Prednisone about did me in. I am on my 3rd flare up in 10 years. I was treated with budesonide and placed on a feeding tube. The first two times I completely healed after 4-5 months. This third time I got a little better and was able to go back to work but now it is flaring up again. I was referred to Mayo and have an appointment in 6 weeks. My current doctor had me open up the budesonide and put it in apple sauce to better treat the stomach since it is designed to treat your intestines. I am frustrated and worried. Hoping to find some answers. There is a local ketamine office where I live and occasionally get iv infusions with vitamins and minerals. It makes me feel better right away but doesn't last and is expensive.

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Replies to "I have collagenous gastritis. I was first diagnosed 10 years ago. Prednisone about did me in...."

Some medical ailments are very hard to treat. Hope you start feeling better again.

Hi OdieAnne, welcome to Mayo Clinic Connect. You may wish to connect with other members including @ken82 in this discussion in the Digestive Health group

- Collagenous Gastritis https://connect.mayoclinic.org/discussion/collagenous-gastritis/

I'll be interested to hear what you learn at your upcoming Mayo appointment.

I am newly diagnosed with EPI (exocrine pancreatic insufficiency) and collagenous colitis (thinking it is the same as collagenous gastritis). Not sure which is which so far, but the digestive enzymes for EPI have helped. Not sure which symptoms are which but a good day is a good day. I'm sure we'll talk more.