He is very unhappy. He feels this is not him anymore. He is 6,4”, use to weigh 240 lbs with maybe 8-10% body fat, look Lee like Superman, ate the perfect diet, no fast food, very rarely anything fried. 34 “ waist. Now he’s under 200 lbs. very weak, Balance is so bad he can’t talk to u standing up as he needs all his strength to concentrate standing. He has all the bad side effects from the radiation, cisplatin, and now Keytruda. He was told he needs to finish out his treatment which in September in one more year. I can tell you right now, I don’t see him making it. You can’t have diarrhea for 5 months.
Again, when someone is basically this bad your going to tell me there’s a light at the end of the tunnel?
You doctors that act like he’s the first person they’ve dealt with with such bad balance.
I grew up in MN, Mayo in Rochester is fabulous. My dad had cancer, the doctors were straight up honest with us. My aunt had a rare blood disease and in the long run ended up with another.The doctors again were honest with us. Same with my mom.
The one thing I’m not afraid of is dying. What I am angry about is them not being honest with his cancer condition. He could be spending his days doing whatever and spending quality time with those he would like to see. Instead he’s on this pretend ride. I guess it’s about the money, cause his quality of life sucks. Truth sets you free. And if by a miracle from God you get more time, well I call that a Blessing. I’ve read his chances of survival rate. They know and they should tell him. Many people don’t get their ducks in order cause they think they are cured in 2 yrs after their ofc of Keytruda. Well, I’m pretty sure with the thousands and things of patients.. they know the answer. Cause I do. Giving him a choice now, is better than finding out you went through all this misery for nothing.. but you helped their case study. That’s just not cool to me.
And for docs when a patient and family want to know, your job is not to brush them off and give them false hope. Can again Miracles can happen, but getting the truth of your outcome changes us a priority.
He could be one of the 20-30% to survive. But that should come from his doctor. They know what stage he’s in. When they do a pet scan and there’s a lil flicker… it’s not attached to a limp nodes. Is that cancer trying to break thru? Then it goes dark.. it’s still there and showing as something but now it’s dark. What is that? Why didnt it dissolve? They know. They know exactly. That’s why I’m frustrated. A great doctor doesn’t use the excuse and everyone is different. Because they know the studies, they have the answers. So who’s benefitting in the long run when your quality life is getting worse and worse? Their case studies?
I grew up with many many cousins. Many died of accidents etc. I know all about death and taking care of family members and a friend. He can’t make a decision cause they aren’t being real so he can. He’s miserable. I’m not a happy camper as I see exactly what’s happening.
One day these doctors that don’t tell the patients the truth and they already know will be facing God one day. That I know. Sorry I went on and on, but I am beside myself, and I think this is absolutely ridiculous and so not right in any way, shape, or form.