Hello @bustrbrwn22, my great sympathies for your ongoing health issues. I have determined that having autoimmune diseases is indeed very lonely and isolating. People just tell me I look good and don’t understand how I claim to feel so ill.

I have three autoimmune diseases, one of which I had symptoms for years which when I told my primary care doctor she paid no attention. If she just would have sent me for some labs I wouldn’t have ended up in Stage 3 liver cirrhosis and nearly dead three times. I think like many with autoimmune diseases we can completely relate to your frustration with medical providers that don’t listen until it’s too late.

I know there are good medical providers out there though, as I was blessed to have a liver transplant. My surgeons and providers on my transplant team are truly remarkable.

Its indeed a daily struggle to remain positive when you think no one cares and when one is in pain. I try to find joy in simple things and continue to hope for better days. I hope that you find the same and can remain positive in the face of such adversity.