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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 10 hours ago | Replies (7051)

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@bustrbrwn22

The biggest thing that has helped me is opening up to people and seeking support. I never used to open up before even to my husband. Lorirenee1 introduced me to Dan Buglio and I watch several of his videos on you tube every morning until I have my anxiety and breathing under control. I am trying very hard to do whatever I can to not stress over all this stuff because that could on boy make the autoimmune response worse, I would think? I have to Bruder my eyes now cause they are really throbbing now and giving me a splitting headache but I so appreciate everyone who has even liked my posts. I was feeling so alone and you all have lifted my spirits to keep on fighting through the pain. I suspect Lichen Planus isn’t done with me as I have a couple orifices left that are already showing symptoms of LP so keep me in your prayers please. Any suggestions of how to handle better or advocate for myself better are appreciated.

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Replies to "The biggest thing that has helped me is opening up to people and seeking support. I..."

@bustrbrwn22 - The Patient Revolution website has lots of great tips for learning how to advocate for your health and to bring your doctor along for the trip 😁 Check out the topics on this page - https://www.patientrevolution.org/tools. I like the Tools for the Visit page which helps plan your conversation with your doctor.

Sharing with others is a great start @bustrbrwn22 . You have developed some good routines for calming yourself with a video that is helping you. I just looked at the link that John, @johnbishop, shared from the patient revolution website. If you haven't read it yet, I would encourage you to read it, especially the note cards to direct conversations with a doctor. I found those to be very good.

Have you considered getting a second opinion at a research-oriented health care facility? I think that might possibly provide you with a valuable resource. These types of health care centers are good places to find help for hard to treat health issues.