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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 1 hour ago | Replies (6919)Comment receiving replies
Hello @bustrbrwn22
I just now read your post about your multiple diagnoses and I am glad that you picked Connect as a place to share your disappointments, losses and grief. You are certainly not whining but sharing your pain with others and that is a healthy thing to do.
I would also like to invite Rachel, @rwinney, to this discussion. She has also had difficult-to-diagnose vision problems as well as chronic pain. She may be able to share some of her coping strategies with you.
Do you have any specific coping strategies that are helpful to you now?
Replies to "Hello @bustrbrwn22 I just now read your post about your multiple diagnoses and I am glad..."
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The biggest thing that has helped me is opening up to people and seeking support. I never used to open up before even to my husband. Lorirenee1 introduced me to Dan Buglio and I watch several of his videos on you tube every morning until I have my anxiety and breathing under control. I am trying very hard to do whatever I can to not stress over all this stuff because that could on boy make the autoimmune response worse, I would think? I have to Bruder my eyes now cause they are really throbbing now and giving me a splitting headache but I so appreciate everyone who has even liked my posts. I was feeling so alone and you all have lifted my spirits to keep on fighting through the pain. I suspect Lichen Planus isn’t done with me as I have a couple orifices left that are already showing symptoms of LP so keep me in your prayers please. Any suggestions of how to handle better or advocate for myself better are appreciated.