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Mild ground glass opacities and blood markers for autoimmune disease
Autoimmune Diseases | Last Active: Sep 9, 2021 | Replies (20)Comment receiving replies
I am in the same situation. My dry cough over the past 2 years is getting worse & more frequent, my ct scan detected ground glass and fibrosis and a nodule. I did my pulmonary function test and the 6 minute walk test - Pft not great, but not v bad either . Im awaiting treatment for the lungs. Waiting is stressful .
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@spiritnsoul and all
May I ask if you have a diagnosis yet? Seeing a pulmonary specialist? Rheumatologist? I have had Sarcoid since I was 40 years old...74 now. Hit lungs then, remission after 8 months of very heavy prednisone then off and on prednisone as it keeps hitting and my lungs are hit hard several times a year with bronchitis and/or pneumonia, asthma. Dry cough.
I found with this kind of disease, I had to take a proactive approach. I got very involved with my diagnoses and care.
Suggestion: you do the same . Become a 'difficult' patient, as a cancer doctor wrote in his book for patients with advice to ask questions, get answers, ask again and more until you get heard and are involved in your treatment. Ask, listen, understand, research using ONLY legitimate sources....i.e. Mayo Clinic, Cleveland Clinic, major university hospitals, etc...I go online to these sites and others as these, find info so I can understand what's truly happening in my body.
If your doc is out of town, speak with his partner or another person who can give you results. You can not sit and wait. Be proactive. Now. Be strong and learn and do well...blessings, Elizabeth