@johnbishop Thanks John, I feel so lonely. My "disease" and how pervasive it is is so rare I don't have anyone to identify with. I don't ever hear from anyone on the Mayo Clinic website about my posts (everyone has too much email) and probably no one understands how harmful this disease is since so few people have it. I will pray that people reach out to me at least to support me, like you. Along with the tremors and stiff legs it is so hard to keep fighting every day doing my stretches and my husband is now starting to take me for very short walks so I can hopefully have some quality of life and beat whatever happened to me, seizure or whatever. It is so depressing to think that some doctors think I am faking it, I have bad days and badder days but every day is a challenge and I welcome any support.