I was diagnosed around the end of April of 2021. I was put on 15 mgs of Prednisone and within 2 days my body felt 99% better. I could walk, get up out of a chair unaided and other things that had gotten so hard to do, I could now do again. I was told to try to decrease my prednisone gradually. Not knowing exactly what was meant by that, I decided on my own to go down by 1/2 a pill, once a month. That was a 2 1/2 mg per month decrease. Well, I got down to 5 mg. and my pain was back. Not as bad as when I started, but it was painful. I called my doctor and he said go back up to 7. He called in 1 mg tablets for me. I went back to 7 but still had pain. On my own, I went to 9 mgs.
What I want to know is with the prednisone, are you supposed to be pain free, or just good enough to manage . I still have pain and feel sluggish. I am not myself. When I was at 15 I felt much better. Now I can still feel aching if I don't move around regularly. After sitting for a while, when I walk, my legs feel heavy. Not really painful, and getting up doesn't hurt, but I don't feel right. Any ideas??