@cdhouns i know that many people want to be seen at the Mayo Clinic.
https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/
Do you think your daughter’s doctor might make a referral to Mayo for her?

Cdhouns, different departments at Mayo Clinic have different capacity and availability. I wouldn't assume there is a waitlist. If your daughter is interested in seeking care at Mayo Clinic, I recommend she call to find out about availability. Here's the contact information http://mayocl.in/1mtmR63

Hello @cdhouns,

I have been reading the posts about your daughter's difficult symptoms. I can't imagine how hard this must be for you and for her. I see that a couple of people have recommended a second opinion at Mayo. At one time, I felt as you do, that every hospital system is about the same. However, from personal experience (and that of others who have posted on Connect), I have found that not to be the case.

Research-oriented and multi-disciplinary medical facilities like university medical schools and facilities like Mayo are really different in the way they approach hard-to-treat problems. I've had three surgeries for a rare type of cancer and started off at a relatively well-known hospital in my community. After two surgeries there, I went to a university medical system (about an hour's drive from me) for my third surgery and what a difference it made!

If you can obtain a second opinion for your daughter at a research-oriented medical facility, I would like to hear from you.

Will you post again if you decide to give this a try?

Not to sound discouraging, because I have found a lot of helpful advice for my son's undiagnosed issues here, but after beginning the process to be seen at Mayo, I was told it would be a year wait. My son is 17. I do not want to wait a year to get him help, but we are still on the list. Best to you : )

@cdhouns Hello, I’ve been thinking of you and your daughter and just wondered if you have learned anything new. If you don’t mind sharing, can you tell us how both of you are doing?

After almost 2 years of suffering with what my cardiology believes is dysautonomia, All my other specialists from neurologist to endocrinologist to other cardiologists have referred me to the Mayo clinic in Jacksonville and they called me two weeks ago and said that I am on a more than one year waiting list. This is absolutely insane that someone who suffers every single day and cannot even get a job because of my disabilities with this disease they say I have yet I have to wait over one year to be seen by a doctor at Mayo clinic. This is horrible. What a nightmare