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@billchitwood

So far we have been able to manage the pain. He also has valve problem in the right leg which was identified years ago (and I think now extends to left leg as well) - causes purpura and hard to heal sores. Did cause edema but now not so much but I think because his legs are constantly up that helps on the swelling. Potassium was normal last blood test a year ago - but obviously that could have changed. I think he really doesn't want to know what is happening. Years ago we did fill out all the 'life' forms and daughter has copies as well. Our KY doctor had them. When they transfer medical records do they transfer those forms as well? Thanks everyone for all the 'listening' and helpful suggestions.

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Replies to "So far we have been able to manage the pain. He also has valve problem in..."

When they transfer medical records do they transfer those forms as well?
Probably, but you need to double check that they are accepted as is in your state. My parents lived half time in 2 different states with very different requirements, so needed 2 sets of documents. Good thing they had them too, because my Dad ended up in hospice in the second state.
Sue

I feel you. My mom wanted to die at home and people get purple blotches on them before they die. Not saying he is dying, but I helped my mom and it's a scary hard road, but I believe that people should have their wishes respected. I am not going to lie though...it was a really stressful situation made 1,000 Xs stressful by family members who were not much invovled but wanted to give their two cents. And at some point for all of us, it is just pain management. And if I could do it all over again...help mom die at home, I would. And I would find ways to do it even better. So enjoy your jorney as silly as that sounds to say. I just remember my mom telling me "This dying thing is easy." And that lightened my heart to know that.