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Use of Prednisone and Improvements in Bone Density
Osteoporosis & Bone Health | Last Active: Nov 1, 2022 | Replies (19)Comment receiving replies
@becsbuddy I was on prednisone from when I had my transplant in September 2016 until a few months ago. I sort of begged them to take me off of it and they reduced it and then took me off of it, adding in extra tests to make sure the effect was not bad.
I am really sort of upset though that when put on it I wasn't warned about the effects on bones so that I could have been proactive. I'm not sure if that's because Mass General makes it clear that they handle anything to do with the transplant and all else should be handled by your PCP or appropriate specialist so they figured my PCP would say something or what, but I plan to bring it up in the fall when I have an appointment.
Bottom line though is that my PCP dropped the ball completely so I ended up with advanced osteoporosis. I have changed PCPs now despite having a great rapport with my old one. I liked him a lot but I need to more than like him, I need to trust that he will pay better attention to what I need medically. The jury is still out on my new PCP, I've only seen her two times, once for the initial visit, and one other time.
JK
Replies to "@becsbuddy I was on prednisone from when I had my transplant in September 2016 until a..."
I am 70, advanced Osteo, many broke and compressed back…. I am starting a vitamin/ mineral regime, I prayed for help been reading for 11 months… found this! Mira and Jayson Calton…. She at age 30 had edvanced Osteo and bones of 80 year old… had to sale great business and move where her family could take care of her…. She is now normal bones…. Look up fantastic! Makes total sense, put in your body what it needs and your body will do what it is supposed to do…. Heal and stay healthy… I have bought all I need and I am starting Monday. Much cheaper than algaecal and strontium that didn’t help me at all, got worse so quit after six months getting worse. Need all prayers I can get. I have almost lived in bed for 11 months, I have hope in God and giving my body what it needs to function…NATURALLY. NO DRUGS ! I have refused drugs making a unhappy dr, that never had an encouraging word, don’t think they know anything but drugs they just don’t have knowlegeand fuss at me and tell me how bad it is going to be….also will have
new doctor. First thing need is
vitamin and mineral blood test to see what I need …. And a dr that cares for my health! Found one too. Thanks for prayers in advance. I will post after first three months…. Pray this will give hope and encourage a lot of us. Some hope and good reports are good. Caltons have 2 books that really opened my eyes and understanding with hope and facts. One on bones and one on macronutrients. “The Macronutrient MIRACLE” about losing weight and REVERSING DISEASE, 28days results… and the other one was on Bones, can’t remember the name but I bought both eye opening to a lot of Questions I couldn’t find answers to… hope this helps and brings healing and knowledge.
It's discouraging when Doctor A assumes Doctor B is providing all patient education. And it should never happen.
I now ask a LOT of questions of doctors, and pharmacists, prefacing my questions with, "Is there ANYthing else I need to know about this drug or procedure? ANYthing you've forgotten to mention?"
I don't want to trip over any predictable, belated Unintended Consequences or have any "Oops!" notes in my medical record. When we are not adequately informed, we can only give Uninformed Consent to doctors which is a violation of the most sacred tenet of the doctor-patient contract.
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Wow. And it is a good idea to question any Dr.
I became a cripple after my Prostate was removed in 2018. I gave up completely on my pcp. Made the rounds of surgeons and pain drs. Even went to MD Anderson for bone scale.
I found, on my own, the spine implant things. I am working with three different pain specialist. They all have somewhat different solutions.
I finally, after a couple of years got a prescription for tramadal. I take sparingly. But it does help.