So far we have been able to manage the pain. He also has valve problem in the right leg which was identified years ago (and I think now extends to left leg as well) - causes purpura and hard to heal sores. Did cause edema but now not so much but I think because his legs are constantly up that helps on the swelling. Potassium was normal last blood test a year ago - but obviously that could have changed. I think he really doesn't want to know what is happening. Years ago we did fill out all the 'life' forms and daughter has copies as well. Our KY doctor had them. When they transfer medical records do they transfer those forms as well? Thanks everyone for all the 'listening' and helpful suggestions.