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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: Oct 17 5:52am | Replies (571)

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@pryor

I have just been diagnosed with Idiopathic Peripheral Neuropathy, both lower legs with no pain but with Muscular Atrophy. What to do?

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Replies to "I have just been diagnosed with Idiopathic Peripheral Neuropathy, both lower legs with no pain but..."

Hello @pryor, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. What to do is a great question that unfortunately has a lot of answers depending on who you talk to. My symptoms were pretty much the same as yours only I waited 20+ years to get a diagnosis because I was always told if I do have nerve damage and no pain, there is nothing they can do to help with it. So I had to do my own research which is how I found Connect. From my perspective, the best thing you can do right now is learn as much as you can about your condition and also what others have found helps them. It is a lot of reading but hopefully there is a light at the end of the tunnel for you.

Besides reading through the member stories in this discussion, you can also search for other discussions in the Neuropathy group to see if there are discussions that may have answers for you. Here is the Neuropathy group page that lists the discussions - https://connect.mayoclinic.org/group/neuropathy/

Here are my two favorite sites for learning more about Neuropathy and research going on.
-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

What worries you most, the muscular atrophy?