← Return to COVID vaccines and neuropathy

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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 14, 2023 | Replies (2164)

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@sueinmn

I understand your feeling! I was struggling with unmanaged pain for years, until my primary sent me off to a pain management doc, who in turn sent me to a specialized PT. Long story short, after months of MFR, stretches and movement therapy, I came out the other side...not without pain, but manageable. In addition I gained a lot more self-awareness of my power over my body. Last week saw some days of unavoidable inactivity and long hours in the car, and the pain and spasms came roaring back. I have now spent 5 days getting things calmed down, this is the first day I am ready to walk and run errands.

So I have learned that exercise, therapy, and changes must become a way of life. There is no cure, only management. But it is totally worth it to have decent quality of life.

Good luck with your consult.
Sue

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Replies to "I understand your feeling! I was struggling with unmanaged pain for years, until my primary sent..."

Thanks Sue. I credit walking, good diet, and supplements to be helping with at least some of the neuropathy pain. I’d like to try MFR, so I am going to ask the neuromuscular MD about it. I’m glad it has helped you.

Unfortunately I’ve gotten no where with the rheumatology department, which I think I need as well. So, that’s on hold.

I’ve been contemplating the Spoon Analogy today. It is helpful for realizing all the things that impact my mind and body and maybe how to organize them better. Something that, as you say, would help me be a better manager of my body. Fortunately, my neighbors and I get out walking regularly before 7 am, so this helps me commit, and get it done before work and most appointments.