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Use of Prednisone and Improvements in Bone Density
Osteoporosis & Bone Health | Last Active: Nov 1, 2022 | Replies (19)Comment receiving replies
@tsc. Ive been taking prednisone for almost 4 years for an autoimmune disease. I started on really high doses and now I’m in the process of tapering. Currently on 8 mg. No one put 2+2 together so I wasn’t started on a bone “replacement” drug until it was too late. I’ve been taking Fosamax for about 3 years but nothing has improved. I am now working with my doctor to replace the prednisone with CellCept (Mycophenolate Mofetil). It works the same as prednisone without the horrible side effects. We shall see!
Are you taking prednisone? Can i ask what you’re taking it for and how much?
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Yes my mother fir bone cancer
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@becsbuddy I was on prednisone from when I had my transplant in September 2016 until a few months ago. I sort of begged them to take me off of it and they reduced it and then took me off of it, adding in extra tests to make sure the effect was not bad.
I am really sort of upset though that when put on it I wasn't warned about the effects on bones so that I could have been proactive. I'm not sure if that's because Mass General makes it clear that they handle anything to do with the transplant and all else should be handled by your PCP or appropriate specialist so they figured my PCP would say something or what, but I plan to bring it up in the fall when I have an appointment.
Bottom line though is that my PCP dropped the ball completely so I ended up with advanced osteoporosis. I have changed PCPs now despite having a great rapport with my old one. I liked him a lot but I need to more than like him, I need to trust that he will pay better attention to what I need medically. The jury is still out on my new PCP, I've only seen her two times, once for the initial visit, and one other time.
JK