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Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: 10 hours ago | Replies (416)

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@wendycad

I too have BFS but the call mine CFS...CRAMP FASCICULATION SYNDROME. I have had it for 4 years now, not precipated by any illness. Starting with a twitch in my left eye and has progressed to twitching, mostly in my left leg, knee to foot and right triceps area. Cramping all over, mostly hands, feet and rt arm. I can handle it during the day but at night when I try to sleep it is very disturbing and disruptive. Been to 4 neurologists...lots of meds...no cure...some nights better than others.

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Replies to "I too have BFS but the call mine CFS...CRAMP FASCICULATION SYNDROME. I have had it for..."

It is baffling. I'm sorry they haven't been able to find something that helps you yet. I have some cramping too, at times. Some days are better than others. It almost seems like I have a good day or two, then a day or two with more fasciculations and cramping. It doesn't seem to correspond to amount of sleep or work. If I find out anything helpful, will definitely post it.