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@athenalee

Thank you @becsbuddy. Some good tips. The title of the website is so appropriate for people with autoimmune diseases. I get pretty tired of people telling me how good I look! I know they mean it in a nice way, but sometimes I just want to respond, “thanks, but I feel miserable and in constant pain, with numb tingling extremities, a sore throat I’ve had for months, fatigued, etc.!

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Replies to "Thank you @becsbuddy. Some good tips. The title of the website is so appropriate for people..."

I hear you-I have full body tingling,fasciculations, burning-numbness and pain. Every time I try to wrap my head around this body I don’t recognize some new strange body symptoms appear. I forget what a wonderful body I had just a year ago felt like.Even my head buzzes and my legs and toes cramp. No answers from doctors except maybe-“Chronic pain syndrome”-I have no injuries or notable spine issues. The worst is that I look fine-I feel like people think it is psychological. -but you look so good they say-I stopped trying to tell them about this because they don’t understand. They are kind but say things like -It’s been a stressful time”-ugh. My doctors are receptive and I have had many tests-all normal except low IGM which is normal for me-not the average person. I appreciate these articles. Very interesting and notable. I know something is terribly wrong with my body-I’m scared one day it will reveal itself and It won’t be good. For now-the doctors only know what it isn’t. I am sure it is neuro-my body feels like it is firing off all signals like wires crossed. I feel it is autoimmune. I wish you relief -hope-and answers❤️