← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

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Hello @dalet72, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. It sounds like your PMR journey has been difficult. It's good that you are focusing on diet which can really help but I don't think it's the total answer. Here's some diet related information that you have seen and I pulled out a small section here to mention

"No diet is proven to make PMR significantly better or worse for most people, and everyone reacts differently to foods. Pay attention to what foods seem to help you feel your best and keep track of them. It’s also important to have a well-balanced diet and to eat from all major food groups. Following are some foods that may be beneficial to people with PMR." -- Can Diet Affect Symptoms of Polymyalgia Rheumatica?: https://www.healthline.com/health/polymyalgia-rheumatica-diet

My first occurrence of PMR took 3-1/2 years to taper off of prednisone. The last six months of that was going back and forth weekly between 1 mg and 1/2 mg until I was finally able to stop taking prednisone with a minimum amount of aches which went away after I got up in the morning and started moving.

Do you like to exercise as part of a daily or weekly routine?

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Replies to "Hello @dalet72, Welcome to Connect, an online community where patients and caregivers share their experiences, find..."

@johnbishop did you have many flares
in that time? I’m getting close to 4 years and it’s hard to stay under 7 mg. And when I flare I have to go to 12mg. Drs now are not sure what it is and why it’s lasting so long. Did any other meds help you get off. I tried methotrexate in the beginning but it didn’t help, maybe because stupid Dr didn’t think it was PMR and he tried to ween me off in 3 months. Any suggestions?