← Return to Please Share your MAC and Bronch Success Stories - However Small

Discussion

Please Share your MAC and Bronch Success Stories - However Small

MAC & Bronchiectasis | Last Active: Apr 22 1:49pm | Replies (66)
Comment receiving replies
@judyhodgern

I have been on azithromycin,Clofazamine and Ethambutal for 1 1/2 years. How long do people usually stay on these medicines?
I take the medication‘s fine no side effects . My sputum‘s specimen six months ago said that I still had Mac and I sent a new specimen in yesterday. I am fairly asymptomatic although I am bringing up a little bit more in the mornings but I would call myself asymptomatic except for sob — but I do play golf in Tampa Florida and with the humidity that can take it out of you I hydrate a lot. Life is good right now.

Jump to this post

Replies to "I have been on azithromycin,Clofazamine and Ethambutal for 1 1/2 years. How long do people usually..."
hydrang3a | @hydrang3a | Aug 24, 2021

Interesting. I was on Azithro, Rifabin, and ethanbutol for 18 months finished two years ago. M.intercellular was killed.😀However the cavity was not closed and I became very ill with m. Abscessis in June Now on daily IV’s of Amikacin, Nuzyra and Imipenem as well as oral Clogazamine all for 6 months. Will have surgery at NJH in Denver to remove cavity in October. This is tough. Has anyone else gone through this treatment? I’m trying to stay positive and I am thankful for my doctor at NJH for knowing how to handle this awful disease.

VIEW AND REPLY