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Benign fasciculation syndrome (BFS)
Brain & Nervous System | Last Active: Apr 14 11:56pm | Replies (358)Comment receiving replies
Hello @franksgirl210, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. It definitely seems that you might be onto the cause of the fasciculations. Hopefully other members with experience can share some information with you. I did find an article on the subject but it's one of those you have to purchase to read and you already have a neurologist appointment setup which is good.
A viral origin for benign fasciculation syndrome?: https://link.springer.com/article/10.1007/s10072-020-04888-3
Do you mind coming back after your appointment and let us know what you found out?
Replies to "Hello @franksgirl210, Welcome to Connect, an online community where patients and caregivers share their experiences, find..."
I too have BFS but the call mine CFS...CRAMP FASCICULATION SYNDROME. I have had it for 4 years now, not precipated by any illness. Starting with a twitch in my left eye and has progressed to twitching, mostly in my left leg, knee to foot and right triceps area. Cramping all over, mostly hands, feet and rt arm. I can handle it during the day but at night when I try to sleep it is very disturbing and disruptive. Been to 4 neurologists...lots of meds...no cure...some nights better than others.
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I would be happy to let you know what he says about it. I really appreciate reading the experiences of others. It helps to know you're not alone 🙂 I actually came across that article, too, and was tempted to buy it. Thanks for your help.