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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Hi Terri- Just hard to find time to do everything lately. Seems by the time you do the nebulizer an hour has gone by. I do the laundry, shop for groceries, clean the house, take care of my grand daughter and clear the lungs about 2PM. Pretty much ends the day except for dinner and dishes.
Far as fungus, had a couple colonies of exophiala, had the streptococcus and haemophilus influenzae. It seems that the strep and the influenza have a tendency to go together. Since that time, I took doxy, levoquin and keflex so something knocked them out because they did not show up in the next sputum sample.
I read my oxygen level before going to bed and if it is below 95% i use the oxygen for awhile. I have to admit it does help me sleep better. So far I have not had to have a nighttime reader.
Just rereading your post and see you had mentioned the "exophaila". The doctor also did not mention it to me but It did not show up again so probably killed it with ABX. I would figure they do not want to freak us out too much by mentioning that we also have a "black fungus" growing in our lungs! Especially if they feel the ABX will knock it out. They cultured the mycobacterium and it did not grow, so that was great news.
At the moment, feeling pretty good. I am like you though, waiting for the humidity and heat to go down. Being outside in it is difficult on the breathing.
Love the air conditioning!!!!
Fondly, Mary Jo
Replies to "Hi Terri- Just hard to find time to do everything lately. Seems by the time you..."
@maryjo2sell Hi Mary Jo. I just returned from being evacuated from 'Irma'. It did not hit our town, although we were supposed to have a direct hit originally. I hope that you stayed safe and that your home is alright. PLEASE let me know how you are doing. You are in my thoughts, Terri
I am glad for you Windwalker. We have a house in Largo near Clearwater and Tampa and we were blessed also. God was with us!
@nick52 Hey fellow Floridian...I live in Palm Harbor!
Oh wow In. Palm Arbor . It would be nice to meet you this winter boomerexpert!
Is Palm Harbor in Pinellas county? We live in Largo
@nick52 indeed just as is Largo...surprised you haven't heard of Palm Harbor!
Would love to! Contact me here when you're ready for a get together cocktail!
No problem! Thanks boomerexper!
Hi Terri .Sorry I took so long to reply! Evacuated, then tried to return home, but no water or electric so headed back to a hotel. But condo is fine. Thank goodness. Glad your place was okay! Did not look good there for awhile.
Guess the excitement and travel did not do well for me. Ended up getting sick and had to bring in my big guns- Levoquin and prednisone. But they helped!
Just curious- on another site, another Bronch person just moved to Vegas for drier air. She lived in South Carolina, very humid. She said she already felt better and less sputum. Would love it if anyone knew if this could help? I looked all over the internet but did not find any proof. Wouldn't less "stuff" be fabulous?
Thanks for your thoughts Terri!
Fondly, Mary Jo
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@maryjo2sell Ha! I just had this same conversation yesterday with a friend of mine. She asked me why I do not paint or make jewelry any more. I told her that I am have a 4 hour window in a day and it ususally includes errands, or housework. I went blow by blow with her how my daily routine goes (mine includes 2 hrs breathing treatment in the a.m. and then another two in the p.m.) That is 4 hrs gone right there. Told her how I hit a wall about 3:30-4:00 every afternoon and have to lay down for an hour and a half to that I can rest up to get through dinner. After dinner, I am exhausted, then watch tv with hubby. She said "wow, I hadn't a clue!" Don't get me wrong; in the 4 hours I have free, I go and do. I go to the gym, ride my bike, walk my dog, or help my friends i.e. helped one pack last week to move. Although admittedly, the humidity has stopped me in my tracks over this summer. My point is, I am not so sickly that I do nothing, but, gosh, it seems like everything takes twice as long as it used to! P.S. having a two story house doesn't help.