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Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: Apr 14 11:56pm | Replies (358)

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@franksgirl210

Hi. This is new for me, but here goes... I am 49 and had been very healthy. About 6 weeks ago, I contracted a nasty viral illness with perisistent diarrhea and some respiratory symptoms. The same day I got sick, I started having fasciculations different places in my body. The viral illness lasted at least 10 days, and the fasciculations are continuing, although maybe a bit milder. About a week after the illness set in, I also started experiencing vibrating in my feet, cramping various places throughout my body, and sometimes felt like my entire body was vibrating. I had a tremor for several days, which went away. The vibrating has improved, although I still have it in my feet. One interesting side note... I had a nasty viral illness in my twenties, which left me with the vibrating all over my body for a while, but particularly in my feet. I had stiffness in my joints and the vibrating sensations for over a year. I've been tested several times for Lyme and various things, but was always negative. Since that illness, sometimes when I get sick the vibrating comes back, but milder and goes away after the illness does. Never had fasciculations until this illness. I am going to see a neurologist in November, and am pretty sure it's BFS, since my experience sounds similar to what others of you have experienced. Just thought I would comment because it's very strange indeed. I, too, was concerned about ALS. On a side note, my husband was initially diagnosed with ALS when he was 40, but has a much rarer condition called multi-focal motor neuropathy, which is treated with IVIg.

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Replies to "Hi. This is new for me, but here goes... I am 49 and had been very..."

Hello @franksgirl210, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. It definitely seems that you might be onto the cause of the fasciculations. Hopefully other members with experience can share some information with you. I did find an article on the subject but it's one of those you have to purchase to read and you already have a neurologist appointment setup which is good.

A viral origin for benign fasciculation syndrome?: https://link.springer.com/article/10.1007/s10072-020-04888-3

Do you mind coming back after your appointment and let us know what you found out?